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National eHealth Collaborative Releases the Patient Engagement Framework

Culmination of a collaborative project of the Consumer Consortium on eHealth

Washington, DC (November 19, 2012) – National eHealth Collaborative (NeHC) today hosted a webinar to release the much-anticipated Patient Engagement Framework, a model created to guide healthcare organizations in developing and strengthening their patient engagement strategies through the use of eHealth tools and resources. The Framework is the result of several months of collaboration and iteration with many interested stakeholders.

“We hope this Patient Engagement Framework will be a useful resource for healthcare organizations,” said NeHC CEO Kate Berry. “We are at a critical moment when patient engagement is becoming increasingly important given the movement toward meaningful use and accountable care. We as individuals should be more engaged in managing and improving our own health. This Framework is intended as a guide organizations can aspire to as they move in this direction.”

The Patient Engagement Framework outlines several attributes of organizations that successfully engage and support patients, and ultimately their communities, in their care. The Framework provides a series of phases to show the progression from a provider-centric model to one that is truly patient-centered. The phases of the Framework include inform me, engage me, empower me, partner with me, and support my community. Within these phases, the Framework is organized to build on an organization’s capabilities including information and way-finding, e-tools, forms and patient education, patient access to their information, patient role in generating their information, and patient role in the care team.

“The patient is the point of health information, and a framework for systematically keeping the patient’s interests at the center of health information technology helps us move toward higher-performance, higher-value healthcare,” said Dr. Jon Perlin, CMO and President of Clinical Services at the Hospital Corporation of America (HCA). “This is a great way for healthcare to measure how prepared they are for patient engagement.”

The Framework took into consideration several existing resources and patient engagement measures, including those required by meaningful use Stage 1 and Stage 2.  More than 100 individuals from across the healthcare, patient engagement, and behavioral science fields reviewed and provided input on the Framework. Since January, the Framework has circulated among several groups, including the Partnership for Women and Families, The Foundation for Informed Decision Making, Healthwise employees and advisors, the Long Term Post Acute Care Association, members of HL7, members of the Office of the National Coordinator for Health IT (ONC) Health IT Standards and Policy Committees, and members of the Consumer Consortium on eHealth. NeHC thanks Leslie Kelly Hall, Senior Vice President of Policy at Healthwise and a member of the Consumer Consortium Steering Committee for her extraordinary leadership in this effort.

“It was important that we create a tool that could be adapted to a variety of care settings and be a practical guide for organizations really trying to strengthen their patient engagement strategies,” said Leslie Kelly Hall, SVP of Policy for Healthwise and NeHC Board member. “Each time we reviewed the Framework with a group we incorporated feedback and refined our final product. The entire process was a great learning experience and brought us closer to understanding the needs of many communities in trying to effectively engage patients by using health IT.  We recognize that the Framework will continue to be refined.”

The Patient Engagement Framework is available for download at www.nationalehealth.org/patient-engagement-framework. To view the slides or download the recording from the release webinar, visit www.nationalehealth.org/frameworkrelease (recording will be posted within 24 hours of this release).

To provide a concrete tool for organizations to assess their status of consumer engagement efforts and to make progress on implementing the Patient Engagement Framework, NeHC in partnership with HealthCAWS® will soon be releasing an online assessment and supporting tools. The NeHC eHealth Consumer Engagement Organizational Assessment is a business intelligence tool mapped to the concepts and recommendations of the Framework. The Consumer Engagement Organizational Assessment is designed to provide customized progress reports and guidance for improving consumer engagement strategies. In addition to progress reports to help organizations assess where they are along the Framework and opportunities for improvement, the online tool provides a directory of consumer engagement resources and eHealth solutions.

To learn more about the NeHC eHealth Consumer Engagement Organizational Assessment, please contact Jenna Bramble at jbramble@nationalehealth.org.

About National eHealth Collaborative

National eHealth Collaborative (NeHC) is a public-private partnership focused on accelerating progress toward widespread, secure and interoperable nationwide health information exchange to improve health and healthcare.  NeHC’s neutrality and diverse multi-stakeholder participation provides a unique platform for collaboration.  NeHC educates, connects, and encourages healthcare stakeholders to advance health information technology and health information exchange (HIE) nationwide through its NeHC University web-based education program, its Consumer Consortium on eHealth and its HIE Learning Network.

National eHealth Collaborative is a cooperative agreement partner of the Office of the National Coordinator for Health IT within the U.S. Department of Health and Human Services.

November 27, 2012 I Written By

National eHealth Collaborative Convenes Consumer Consortium on eHealth

The Consumer Consortium on eHealth is designed to serve as a collaborative forum for sharing best practices, initiatives, tools, resources, ideas, and experience related to effective consumer engagement on health IT. Consortium members will work together to identify obstacles to the adoption of eHealth, brainstorm solutions, and develop effective communication strategies to reach a national audience with messages about the benefits of health IT.

80 consumer, patient, and business representatives help to spur a new grassroots movement

WASHINGTON, DC (April 27, 2010) – National eHealth Collaborative (NeHC) yesterday convened 80 representatives of consumer-facing organizations ranging from patient advocates to government agencies for the inaugural meeting of the Consumer Consortium on eHealth. The Consortium is the first effort of its kind to organize a broad cross-section of stakeholders to develop and coordinate a program to actively encourage individuals to become more engaged in their health and healthcare through the use of health information technology (IT).

“Empowering consumer/patients through eHealth is the most obvious thing in the world,” said “e-Patient Dave” deBronkart. “The resources and support offered by my online cancer community have saved some patients’ lives, and add significantly to patients’ and families’ ability to participate in their care. It’s vital that more of us realize the value IT can have in helping us to take control of our health. I’m honored to be part of the founding of the Consumer Consortium on eHealth – it could spark a widespread movement to make possible the kind of REAL patient-centered care that we all deserve.”

The Consumer Consortium on eHealth is designed to serve as a collaborative forum for sharing best practices, initiatives, tools, resources, ideas, and experience related to effective consumer engagement on health IT. Consortium members will work together to identify obstacles to the adoption of eHealth, brainstorm solutions, and develop effective communication strategies to reach a national audience with messages about the benefits of health IT.

“Health IT can be a great tool for consumers to improve their health,” said Kate Berry, CEO of NeHC and Consumer Consortium on eHealth Steering Committee Co-Chair. “The NeHC Board and executive leadership are excited to be convening the Consumer Consortium on eHealth as an effort to actively encourage the American public to recognize and incorporate into their daily lives the health IT tools and resources that exist to aid them in proactively engaging in their health.”

The Consumer Consortium on eHealth is led by a steering committee of 13 nationally known experts in health IT and consumer and patient advocacy:
Kate Berry, Chief Executive Officer, National eHealth Collaborative (Steering Committee Co-Chair)
Lygeia Riccardi, Senior Policy Advisor for Consumer e-Health, Office of the National Coordinator for Health IT (ONC), U.S. Department of Health and Human Services (Steering Committee Co-Chair)
Alice Brown, Director, Health Information Technology, National Partnership for Women and Families
Steven Findlay, Senior Health Policy Analyst, Consumers Union
Nancy Davenport-Ennis, Founder and Chief Executive Officer, National Patient Advocate Foundation
Charles Parker, Executive Director, Continua Health Alliance
Michael Lardiere, Director, Health Information Technology and Senior Advisor, Behavioral Health, National Association of Community Health Centers
Joshua Rubin, Executive Director, Kanter Family Foundation
Joyce Dubow, Senior Health Care Reform Director, AARP
Jenifer Simpson, Senior Director for Government Affairs, American Association of People with Disabilities
Marcia Thomas-Brown, Chief Operating Officer, National Health IT Collaborative for the Underserved
Jim Hansen, Vice President & Executive Director, Dossia Consortium
e-Patient Dave DeBronkart, Cancer Survivor and Co-Chair, Society for Participatory Medicine

“This effort aligns exactly with the priorities of ONC as laid out in Goal IV of the new Federal Health IT Strategic Plan,” said Lygeia Ricciardi, Senior Policy Advisor for Consumer e-Health at ONC and Steering Committee Co-Chair. “The Consumer Consortium on eHealth will complement and support current efforts to engage consumers in eHealth and I am excited to see the results we can produce by bringing together such a diverse group of stakeholder representatives and organizations in pursuit of this single, important goal.”

During the inaugural meeting, Consortium members heard from Steering Committee members and other experts who discussed the critical need to broadly and inclusively engage directly with consumers as we experience a time of great interest, investment, and innovation in the health IT industry. Members also began to discuss steps for message development and methods for reaching key audiences. The Consortium will continue to convene over the coming months in the form of workgroups that will develop recommendations for next steps in messaging, communication, audience engagement, and best practices to be presented at the next full Consortium meeting in July 2011.

For more information or to sign up as a participating organization in the Consumer Consortium on eHealth, visit the NeHC website at http://nationalehealth.org/consumers.aspx.

About National eHealth Collaborative
National eHealth Collaborative (NeHC) is a public-private partnership that enables secure and interoperable nationwide health information exchange to advance health and improve health care. Working in conjunction with its partners, NeHC engages stakeholders in a collaborative and consensus-driven way to realize common goals that lead to transformative change. NeHC reaches broadly into all sectors of healthcare and health IT, employs open and inclusive methods, and makes its outcomes broadly available for continued improvement. This philosophy and approach allows NeHC to offer a uniquely balanced perspective that leverages diverse points of view and provides the essential public-private platform for collaboratively pursuing solutions to universal trusted and effective health information exchange. NeHC is a cooperative agreement partner of the Office of the National Coordinator for Health IT (ONC) in the U.S. Department of Health and Human Services (HHS).

April 29, 2011 I Written By